Attention Deficit Disorder ADD/ADHD
Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder
Behaviour support team West Sussex local offer link insert here
Autism Including ASD/ASC/Asperger's Syndrome/SPD
ASC Autism Spectrum Condition
ASD Autism Spectrum Disorder
SPD Semantic Pragmatic Disorder
Behavioural, Emotional and Social Difficulties BESD
Please use our 'Behaviour' section which can be accessed here.
Cerebral Palsy CP
Complex Learning Difficulties & Disabilities Research Project
The Complex Learning Difficulties & Disabilities Research Project website contains briefing packs that provide initial information about conditions which often overlap with others to form the complex make up of children with complex learning difficulties and disabilities (CLDD). There are ten packs on different topics that can be downloaded from their website which contains:-
Dyspraxia (Developmental Co-ordination Disorder)
Fragile X Syndrome
Hearing Impairment (Including Glue Ear)
Glue ear information can be accessed from
Defeating Deafness (Hearing Research Trust)
330-332 Gray's In Road
"Selective Mutism, sometimes called Situational Mutism, is an anxiety-based mental health disorder which usually commences in early childhood. Those with SM speak fluently in some situations but remain consistently silent in others. They may have a blank expression, or appear ‘frozen’ when expected to speak. With early intervention the prognosis for recovery is good, but in some cases it may persist and last right through a child’s school life and sometimes even into adulthood. It is important to understand that those with SM want to speak, but find themselves physically unable to do so due to their anxiety." SMiRA (2016) - Retrieved from http://smira.org.uk/about-selective-mutism/ April 21st 2016
Smith-Magenis Syndrome (SMS) is a genetic disability due to a microdeletion or abnormality of chromosome 17. The key symptoms of SMS include:
- mild to moderate learning disability
- severely disrupted sleep pattern
- delayed speech and language skills
- distinctive facial features
- behaviours that challenge like self-harm, aggression, impulsivity and hyperactivity
"A neurologist talks about Tourette's syndrome, which causes people to make a combination of involuntary movements and sounds. He offers advice on treatments and where to find support" - Source NHS Choices
The libraries across West Sussex can also support by providing resources in enlarged print or Braille.
E.g. Elmer by David McKee (Giant Print and Braille).
E.g. Orange Pear Apple Bear by Emily Gravett (Giant Print and Braille).
For West Sussex parents, carers and young people going through the Education, Health and Care assessment process towards an EHC Plan.
Amaze is an independent charity that offers information, advice and support to parents and carers of children with special educational needs and disabilities.
Benefits Advice for SEND
SEND benefits advice from West Sussex County Council
Jessica Kingsley Publications
Books to support SEND for parents and professionals.
NHS Special Educational Needs
Providing a platform for artists who find it difficult to access the art world.
Founded by Pallant House Gallery, Chichester, in 2006 (and still based at the
Gallery), Outside In provides a platform for artists who see themselves as
facing barriers to the art world due to health, disability, social circumstance
or isolation. The goal of the project is to
create a fairer art world which rejects traditional values and institutional
judgements about whose work can and should be displayed.
Parents and carers support organisation. Type pacso.org.uk into your browser.
Reaching Families was established in 2008 by project manager Brian O’Hagan. The organisation exists to “…empower, care for and inform parents and families of children with special needs in West Sussex.” They are achieving this through the delivery of high quality services that include the publication of their parent-carer guide 'Making Sense of it All'. This publication includes a huge wealth of information on services, education, health and social care, it also has a jargon buster and a directory. The guide is available to download for free or can by purchased as a hard copy.
Reaching Families also offer a range of factsheets and training for parents and carers. See their website for further information.
Citizen Advice Bureau
Arun and Chichester CAB - Chichester
Short breaks for Disabled Children
Find fun, leisure and social activities for disabled children and young people outside the school day.
Guidance on getting early help for young people and their families.
Register at a toy library and borrow from a range of toys to encourage play and learning for children.
West Sussex County Council
Find support, guidance and information for parents and carers of children and young people with SEND.
West Sussex Parent Carer Forum
The West Sussex Parent Carer Forum helps parent carers of children and young people aged 0-25 with additional needs and disabilities to improve and make positive changes to the lives of their families and others. They do this by providing information, support and training to enable them to take part in helping to shape local services and make a difference in West Sussex.
West Sussex SEND IAS SERVICE formally known as (Parent Partnership Service)
West Sussex SEND IAS SERVICE.
Oriel Lodge, West Street, Chichester, West Sussex. P019 1RZ
Helpline: 0330 222 8555